Life with migraine is like living on standby. Standby by nature may be viewed as negative, like the standby passenger all disheveled after sleeping 3 days in the airport. But standby is also one who is ready to deploy, jump into action, and last but not least – a person that is available especially in emergencies.
So living with migraine I standby ready and available, for immediate action
- To stand up against Stigma
- To use my voice in all mediums
- To educate myself so that I may be the best advocate for myself and others, and not STANDBY while others try to pull me down
- I’ll STANDBY with hope for the new treatments in development
There are over 300 different headache and migraine disorders. Over 36 million individuals in the US alone are affected by this disease.
Standby—ITS NOT JUST A HEADACHE! These attacks are defined by neurological symptoms that may include head pain, sensitivity to light, sound, nausea, vomiting, loss of the ability to speak as well as a myriad of other symptoms. Some never fully recover from an attack and ride along the roller-coaster with daily symptoms.
Migraine has no boundaries. It affects men, women, and children. All socioeconomic class and race. But sadly many have to STANDBY for adequate treatment and care. They all deserve attack based treatment paradigms.
There are only 510 headache specialist in the US. That’s about 1 per 85,000 headache/migraine patients. That’s a lot of people standing by. I’ve been fortunate, but I won’t standby and be silent. It’s hard enough to have an invisible illness, but to feel invisible too……well, I don’t want to standby for that.
I’ve always said thru all pain there is a gift, you may not see it at first, but it always shows. I’ve had many gifts and more will continue. Standby me on this adventure- let’s make a difference!