More than 40 million people in the United States live with migraine disease and a half million are diagnosed with Cluster Headache. Yet those who have these diseases often feel isolated and alone. National Migraine and Headache Awareness Month are just two weeks away, and…
My 18 year old daughter has suffered with headaches since 8th grade.
We’ve tried almost every treatment, pill and diet to combat these horribly debilitating
headaches. I am looking for help from a broader community now. Thank you for your assistance.
My story is of a postural or orthostatic headache. This is the major symptom of a Cerebral Spinal Fluid Leak. After many tests, and two trips to the ER my neurologist was able to come to this diagnosis and expedite treatment. The headache from this issue is truly debilitating and the only relief is lying down. I think it’s important to shed some light on this particular type of headache as many people suffer from misdiagnoses and mistreatment before finally getting the proper care they need to treat this.
I wrote this poem to try to put my migraine experience into language. Pain can erase one’s whole world. One yearns only for relief. After pain, I sometimes experience what Oliver Sacks described as a post-migraine euphoria: an overwhelming sense of ease and contentment. My neighbor’s yard is filled with azaleas. Most of the year it is a tangled mess of shrubs but when it blooms, it’s gorgeous. My post-migraine euphoria feels like the azaleas in bloom. But is the euphoria worth the pain?
My 3 E’s of Advocacy