advocacy | National Headache Foundation

Interview with Marina Medved-Lentini, Founder of Parenting with Migraine

December 2023, Episode 168: Parenting with Migraine is a challenge particularly during the holidays with so many triggers, busy schedules, and family gatherings. Marina Medved-Lentini is the founder of the blog and social media group Parenting with Migraine. Listen in…

Interview With Cat Charrett-Dykes, Founder of Chronic Migraine Awareness

October 2023, Episode 164: Chronic Migraine Awareness Cat Charrett-Dykes is a migraine advocate extraordinaire, and she has the purple hair to prove it. Cat is the Founder and President of Chronic Migraine Awareness, Inc., also known as CMA. Social support…

NDPH Aware Survey

July 2023, Episode 158: NDPH Aware Survey New Daily Persistent Headache (NDPH) is a daily, unremitting headache that comes on very suddenly. NDPH can be a particularly frustrating headache disorder as it is characteristically difficult to treat. It is also…

Kelsey Feng: A New Voice in Advocacy

May 2023, Episode 155: A New Voice in Advocacy “Within (the migraine community) I noticed there was a need for a voice that had not been heard before…I thought maybe my voice would help.” Kelsey Feng is a dedicated migraine…

A New Diagnosis With MUMS

April 2023, Episode 152: Cannon Tekstar Hodge’s career in the fashion industry was derailed by a triple migraine diagnosis of Vestibular Migraine, Sinus Migraine, and Migraine with Unilateral Motor Symptoms (MUMS). Cannon is now a super migraine advocate. She uses…

Interview With Bob Wold, Founder of Clusterbusters

March 2023, Episode 151: Don’t miss Dr. Lindsay Weitzel’s discussion with Bob Wold, the Founder and Executive Director of Clusterbusters, a nonprofit dedicated to researching and curing cluster headache while advocating to improve the lives of those suffering from this…

Advocacy and Headache on the Hill 2023

November 2022, Episode 139: What are the goals for Headache on the Hill 2023? Dr. Lindsay Weitzel asks Julienne Verdi, Executive Director of Alliance for Headache Disorders Advocacy, what our specific goals will be at Headache on the Hill 2023….

Can Migraine-Related Stigma Make Us Sicker?

October 2022, Episode 137: Lindsay Weitzel, PhD, talks to two of the investigators (Robert Shapiro MD, Ph.D.; and Dawn Buse, Ph.D.) on the OVERCOME study who presented stigma data at the American Headache Society Meeting related to migraine, stigma, and…

Medical Gaslighting Revisted

What is Medical Gaslighting? We are thrilled to be revisiting one of our most popular podcast episodes! Do you feel you have experienced medical gaslighting? If you have migraine or another chronic pain condition, chances are you have experienced medical…

Americans with Disabilities Act and Migraine

May 2022, Episode 122: ADA and Migraine This is Part 2 of our three-part series dedicated to people who may need to take time from work due to their debilitating headache condition. Today’s episode is on the Americans with Disabilities…

Know Your Rights! Family and Medical Leave Act (FMLA) and Migraine

May 2022, Episode 121: Are you aware of your rights as a person with migraine, cluster, or another debilitating headache condition when it comes to the Family and Medical Leave Act (FMLA)? What is the process? How much time is…

Talking to Your Health Care Provider About Migraine

March 2022, Episode 117: This week’s episode of Heads UP is on How to Talk to Your Health Care Provider About Migraine. This episode has something for everyone. Are you someone who has head pain that is interfering with your…

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