I had my first migraine the year I graduated from university, 26 years ago. I had no idea how they would affect my future or how severe migraine disease can be, or even that migraine IS a disease. I had been a full-time student for 17 years and was ready for my “life to begin.” I had just returned from an epic three-month trip to Europe that I had worked very hard and saved money for, working part-time at a bank while also attending school full-time.
I thank myself all the time for taking that trip at that age, because I couldn’t imagine doing it today. I also spent my 20’s trying on different careers and living in three different states. I even retuned to university shortly before becoming a chronic migraine patient to earn my MBA with honors, hoping to boost my career to a new level.
It’s ironic that shortly afterward, my migraines became chronic and slowly destroyed the dreamed I had for my career. Unfortunately, my migraines have been chronic and daily for over 10 years. I have tried about 70 different treatments including a nerve stimulator implant that was removed due to MRSA. I had four surgeries in five months. I also have other illnesses, including autoimmune thyroid, celiac, many allergies, and recently I was diagnosed with eczema and rosacea; diseases that may be easier to handle alone, but are extremely difficult when in daily pain.
I have been denied federal and private disability three times and am frustrated with the lack of compassion from government and society for pain patients in general, and migraine patients in particular. I have lost almost everything due to my health. But I have gained, too. Meeting and working with the people in the migraine and pain communities has changed my life. We have made significant progress since my first migraine 26 years ago, and I believe the future is brighter for the migraine community.
I still struggle a lot, but then I just pick myself back up, brush myself off, and start all over again. Living with disability is extremely challenging, but it also constantly reminds you of how strong you are. That has to be enough for now.
