Hypermobile Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that can impact various parts of the body, including joints, skin, and blood vessels. This condition also has a significant connection to migraine and other headache disorders.
Here, we explore the symptoms, related conditions, and management of hypermobile EDS, with a focus on its link to migraine.
Hypermobile EDS is a disorder of the connective tissue, which affects tendons and ligaments. In individuals with this condition, these structures are more elastic than normal, leading to joint instability and pain. Symptoms include:
The diagnosis of hypermobile EDS is typically made using the Beighton Criteria, which assess joint hypermobility. Common diagnostic tests include:
Individuals with high scores on these tests, along with other symptoms like joint pain or dislocations, may be diagnosed with hypermobile EDS. However, the condition should be diagnosed by a healthcare provider familiar with the disorder, such as a geneticist.
People with hypermobile EDS often experience other health conditions, including:
Research has shown that individuals with hypermobile EDS are more likely to experience migraine than the general population. These individuals are also more prone to having frequent and disabling headaches. Some reasons for this connection include:
In addition to migraine, people with hypermobile EDS may experience other types of headaches, including:
Managing hypermobile EDS often requires a multidisciplinary approach. Common treatments include:
If you suspect you have hypermobile EDS, it is important to seek out a healthcare provider who is familiar with diagnosing and managing the condition. A geneticist or rheumatologist may be able to make the diagnosis and refer you to specialists who can manage related conditions like POTS, mast cell disorders, and chronic pain.
Hypermobile EDS is a complex condition that can have a significant impact on quality of life, particularly for individuals who also experience migraine. With the right treatment plan and support, it is possible to manage both conditions effectively and improve overall well-being. If you believe you may have hypermobile EDS, consult with a healthcare provider for evaluation and personalized care.
This resource is based on HeadWise Episode 21, Hypermobile Ehlers Danlos Syndrome and Migraine with Vince Martin, MD
Published, 07/02/2019
Stay informed with the latest news, updates, and episodes from the HeadWise podcast.