Discover the incredible stories shared by members of our community. From perseverance and success to moments of inspiration and transformation, each story offers a glimpse into the diverse experiences that make us who we are.
We hope by sharing these stories others will find motivation, gain new perspectives, and connect with a shared human experience.
We invite you to explore, be inspired, and feel the power of storytelling in uniting us all.
Melissa Bearden
For 20 years, I’ve endured a non-stop migraine since battling bacterial meningitis as a toddler. Despite treatments, including trigger management and medications, relief eludes me. My hope lies in future breakthroughs for migraine treatment and ultimately, a cure.
Liv-ing With Cluster Headache
I am a 40-year-old attorney, teacher, and wellbeing professional who continues to model, paint, and exercise…despite managing chronic cluster headache. Do what you can with what you have; you are your own best advocate.
Sandy and Allie’s Story
My 18 year old daughter has suffered with headaches since 8th grade.
We’ve tried almost every treatment, pill and diet to combat these horribly debilitating
headaches. I am looking for help from a broader community now. Thank you
My mother never gave up hope – Edgar’s Story
Edgar Onofre, 14yr old born with hydrocephalus. Vp shunt, cerebral palsy. First born from Perla Rodriguez, a 17yrs old attending high school. How providing care for her child’s, teaches her life lesson. Of being strong because was the only option.
Nicole’s Journey With Spontaneous Intracranial Hypotension
My story is of a postural or orthostatic headache. This is the major symptom of a Cerebral Spinal Fluid Leak. After many tests, and two trips to the ER my neurologist was able to come to this diagnosis and expedite
Headache Poetry
In the fall of 2006 the NHF’s Headache Education and Support Group facilitators invited their attendees to submit headache-related poetry. Because interest in this project grew, it was opened up to all who visit the NHF’s web site, as well as those who read NHF HeadLines.
The NHF received a variety of headache-related submissions. We have selected poems, limericks and verse that are relatable to those who live with this disease.
We extend our sincere thanks to all who submitted their work.
Freight Train Coming, by Christopher Clauss
This is an original long-form poem about my experience with migraines: the onset, the symptoms, and the fog that comes
Jane Schapiro
I wrote this poem to try to put my migraine experience into language. Pain can erase one’s whole world. One
Headache Poetry: The Unknown Mystery Headache
“My body is weak and I almost fall.
I’m numb everywhere and can’t stand it at all”
Headache Poetry: The Pain Never Goes Away; I Call It My Friend
“I call you my Friend, you are always there, From dawn to dusk, every day.”
Submitted Poetry: The Noodle is Under Attack
“It starts in the front and moves to the back.
My noodle is under attack”
Headache Poetry: Status "Migrainosus"
“I struggle with the pain.
Nothing to do but wait,
I cannot see the light
screaming Inside
Share Your Own Story
More than 42 million Americans live with migraine disease and headache disorder. People living with invisible illness often feel isolated and alone.
We want to shine a light on the millions of Americans living with invisible illness! The National Headache Foundation invites all patients and their caregivers to share their unique journey
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