My 3 E’s of Advocacy
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My migraine journey
Migraines suck but I turned my pain into art.
My name is Miriam Edelstein. My migraine journey started when I was 18. Migraines took over my life – I found an amazing doctor who changed my life. You are not alone when you suffer from migraines. I hope you enjoy my journey!
Migraine, loneliness and frustration
Short story about how traumatic migraines can be and my personal story.
I decided to share “My Migraine Story” on my 44th birthday because far too many people suffer from the invisible pain of migraines and we need to share our stories so that others can understand our experiences.
I have struggled with constant headaches for four years of my life, and ancient skulls, of all the strange things, have taught me and brought me peace about pain visibility and personal acceptance of headaches.
People often look back on childhood memories with fondness – trips with family; playing with a puppy; long, hot summer days spent outdoors. For me, it is a slightly different story. One of my earliest childhood memories is of severe…
The ironic tragedy of neurological disorders is that the human brain fails to comprehend itself. Unfortunately in the case of migraine disease, there has historically been a limited understanding of the underlying pathology of the disease. Even in the cases…
I have lived with migraine for a decade but recently I went through a period of 2 years with chronic migraine and really difficult symptoms. My life was turned upside down and I was forced to slow down and make some tough choices to prioritize my wellbeing and promote my healing. I have learned a lot throughout this time and I have found there are silver linings to learning to live with migraine.
This is an excerpt of an essay which I included in the newly published (Kent State University Press, 2020) literary anthology on migraine, which I edited: “So Much More than a Headache: Understanding Migraine through Literature”
