Julie Fleck
Life with migraine is like living on standby. Standby by nature may be viewed as negative, like the standby passenger all disheveled after sleeping 3 days in the airport. But standby is also one who is ready to deploy, jump
Discover the incredible stories shared by members of our community. From perseverance and success to moments of inspiration and transformation, each story offers a glimpse into the diverse experiences that make us who we are.
We hope by sharing these stories others will find motivation, gain new perspectives, and connect with a shared human experience.
We invite you to explore, be inspired, and feel the power of storytelling in uniting us all.
Dianna Stephaine Alvarez
I am Dianna Stephaine Alvarez. I was born in 1996. I live with my parents and I’m an only – not lonely – child. I have not told my story yet. Why? Depression, anxiety, hopelessness, frustration, and not seeing that
Sharing My Headache Story with NHF – Synder
I’ve had my headaches as long as I can remember and I am now 70. About 25 years ago, I went to a headache clinic at the University of Utah, where they diagnosed me with multiple headache syndrome, (vascular, Cluster,
Sharing My Headache Story with NHF – Carol
I have just read the stories online today, and so many were just like mine. I have suffered for over 30-years with chronic vascular migraines. The only answer is to consider a comprehensive headache clinic. Because I am in the
Sharing My Headache Story with NHF – Pat
I’ve been an NHF member for many years and find the newsletter informative and encouraging. During this time I was successful in managing my hormonal-related migraines with the regular use of depo provera, but that was years ago, now my
Sharing My Headache Story with NHF – Sandi
I am 62-years old and have had chronic migraine since at least 7-years old, although they could have begun before that time. 62 years ago no one paid attention to a child with headaches except to give me aspirin, Excedrin,
Headache Poetry
In the fall of 2006 the NHF’s Headache Education and Support Group facilitators invited their attendees to submit headache-related poetry. Because interest in this project grew, it was opened up to all who visit the NHF’s web site, as well as those who read NHF HeadLines.
The NHF received a variety of headache-related submissions. We have selected poems, limericks and verse that are relatable to those who live with this disease.
We extend our sincere thanks to all who submitted their work.
Freight Train Coming, by Christopher Clauss
This is an original long-form poem about my experience with migraines: the onset, the symptoms, and the fog that comes
Jane Schapiro
I wrote this poem to try to put my migraine experience into language. Pain can erase one’s whole world. One
Headache Poetry: The Unknown Mystery Headache
“My body is weak and I almost fall.
I’m numb everywhere and can’t stand it at all”
Headache Poetry: The Pain Never Goes Away; I Call It My Friend
“I call you my Friend, you are always there, From dawn to dusk, every day.”
Submitted Poetry: The Noodle is Under Attack
“It starts in the front and moves to the back.
My noodle is under attack”
Headache Poetry: Status "Migrainosus"
“I struggle with the pain.
Nothing to do but wait,
I cannot see the light
screaming Inside
Share Your Own Story
More than 42 million Americans live with migraine disease and headache disorder. People living with invisible illness often feel isolated and alone.
We want to shine a light on the millions of Americans living with invisible illness! The National Headache Foundation invites all patients and their caregivers to share their unique journey
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